I had the pleasure of being interviewed by accessibility/User Experience(UX) expert Whitney Quesenbery for her and Sara Horton’s Rosenfeld Media podcast, A Podcast for Everyone (released September 3, 2014). The interview focused on a project combining accessibility and electronic personal health records. In that interview I told a story about accessibility leading to innovation and thought I would expand on it here.
Earlier this week I rather hesitantly put up a blog with two posts sharing my informatics research/patient perspective on healthcare technology and patient-centered care. Reactions were very positive and I’m now connected to many new interesting, intelligent and nice people. I have a collection of other posts in the works, but I decided to follow up in way that expands on my two previous posts.
Technology has changed medicine in at least one way. When we see our doctors, they see less of us. If you ask doctors and patients about the electronic medical record (EMR) most will tell you the exam room computer is disruptive to physician-patient communication. Developing more usable EMR’s might help reduce the disruption, but is that innovative? Instead of fewer clicks, what if our goal was to develop technology to enhance physician-patient communication? How would that work? Well, what if clinicians and patients used the computer together?
I work in clinical informatics research where we study healthcare information tasks and apply our findings to new technology solutions for clinicians, patients and families.
In 2011 I was diagnosed with kidney cancer. I was very depressed and stressed out, yet I couldn’t help wearing my “informatics research hat” and observed endless opportunities to improve the delivery of information and communication in my care. This post covers an issue that doesn’t seem to get much attention, but continues to be the most frustrating part of my care.