Earlier this week I rather hesitantly put up a blog with two posts sharing my informatics research/patient perspective on healthcare technology and patient-centered care. Reactions were very positive and I’m now connected to many new interesting, intelligent and nice people. I have a collection of other posts in the works, but I decided to follow up in way that expands on my two previous posts.
I work in clinical informatics research where we study healthcare information tasks and apply our findings to new technology solutions for clinicians, patients and families.
In 2011 I was diagnosed with kidney cancer. I was very depressed and stressed out, yet I couldn’t help wearing my “informatics research hat” and observed endless opportunities to improve the delivery of information and communication in my care. This post covers an issue that doesn’t seem to get much attention, but continues to be the most frustrating part of my care.